Thursday, July 19, 2012
Well I was hoping and praying for the decision to be clear. Stanford called yesterday to say that since the treatment I am on is working, then technically I'm not eligible for the trial right now. I can start the trial if/when the current treatment stops working. Well, I'd say that was clear. So I am going to continue the Xeloda/Sandostatin starting again on Monday, and wait on the trial. I can't thank you enough for all the posts and emails. You are all so supportive, and I really appreciate it! :)
Friday, July 13, 2012
Hello everyone--
Well, I finally got a call from the oncologist's office today. Good news. This chemo that I have been on is working. Everything has decreased in cancerous activity. The size of the tumors remains the same, but they explained that they don't care about the tissue size if the activity is dying down. The spot on my liver that was noted on my last PET was not detectable in this scan! And there was no new growth! Good news all around! The thing is now I am in a difficult situation. This chemo I have been on has been wonderful. I have been tired, but other than that I haven't had most of the other side effects I usually get with chemo, and my hemoglobin and platelets have remained in tact. So my oncologist feels that if it's working after only two low-dose treatments, why abandon it for the clinical trial? They prefer that I stay on this treatment plan for now. I am going to talk with the docs at Stanford to get another opinion and then make the decision on what I will do from here. Please keep me in your thoughts and prayers as I make this decision.
In the meantime, I was very fortunate to have a wonderful performance opportunity for my students on Wednesday night, as they sang back-up for Foreigner at Wente Vineyards, thanks to a radio contest on KKIQ. Here is the link if you're interested:
http://youtu.be/l2czyrG4J_g
Well, I finally got a call from the oncologist's office today. Good news. This chemo that I have been on is working. Everything has decreased in cancerous activity. The size of the tumors remains the same, but they explained that they don't care about the tissue size if the activity is dying down. The spot on my liver that was noted on my last PET was not detectable in this scan! And there was no new growth! Good news all around! The thing is now I am in a difficult situation. This chemo I have been on has been wonderful. I have been tired, but other than that I haven't had most of the other side effects I usually get with chemo, and my hemoglobin and platelets have remained in tact. So my oncologist feels that if it's working after only two low-dose treatments, why abandon it for the clinical trial? They prefer that I stay on this treatment plan for now. I am going to talk with the docs at Stanford to get another opinion and then make the decision on what I will do from here. Please keep me in your thoughts and prayers as I make this decision.
In the meantime, I was very fortunate to have a wonderful performance opportunity for my students on Wednesday night, as they sang back-up for Foreigner at Wente Vineyards, thanks to a radio contest on KKIQ. Here is the link if you're interested:
http://youtu.be/l2czyrG4J_g
Monday, July 9, 2012
Hello everyone--
I have finished the two rounds of Xeloda and need to get a PET scan tomorrow morning at 9:45, so please keep me in your thoughts & prayers for some good results. I am scheduled to start the clinical trial at Stanford next Thursday, the 19th. I'll let you know how things go.... Thanks again for your support!
I have finished the two rounds of Xeloda and need to get a PET scan tomorrow morning at 9:45, so please keep me in your thoughts & prayers for some good results. I am scheduled to start the clinical trial at Stanford next Thursday, the 19th. I'll let you know how things go.... Thanks again for your support!
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