Monday, June 14, 2010

Hi Everyone--
Well after six days of waiting I finally got a call with my results this morning. Good news and bad news. The bad news is there is still some minor growth of my spots only 2 mm. But one of them also shrunk 2 mm. The great news is there is still no spreading. I'm very happy about that part. Unfortunately we will be starting another chemo regimen. They originally told me it was an oral chemo, but now they are telling me they will be giving it by IV infusion, along with Cisplatin (apparently it works better when they are given together). Cisplatin is no fun. It was the first drug I had back when all this began, only it will be given in a smaller dosage. I will start this chemo a week from Wednesday (6/23). It will take 3 hours to give me on the first day, then I go back Thursday AND Friday for part 2 and 3, and those take an hour each. Looks like I'll be shaving my head again. Oh the joys of being bald. At least my wig will fit better now. My big concern about all this is both these drugs cause neuropathy, which is something we were trying to stay away from because my feet are already so numb and painful. I'm also concerned because it causes "voice changes," meaning I'll sound hoarse. Well, I already sound that way, so I'm wondering what's going to happen next. I'm going in to discuss my concerns with my doc this Wednesday afternoon. Please do keep me in your thoughts and prayers that this option will work for me and that I will have minimal side effects. Thanks for your love & concern. At least now I can (sort of) start to plan my summer!

2 comments:

The C Pod Journey said...

Thinking of you - showering you with love, positive energy and prayers for the best possible outcome this round. Know you are loved and His Love is always surrounding you!

Calmadre said...

Your gift of patience is extraordinary and I thank God for it and the great strength He is giving you and for you.
Reading this update I am reminded of Rm.5:3. Keep hanging on to Him, dear JoAnn, as we pray with you.